[senco-forum] Death

I am getting very fed up with certain strands taking over SENCO Forum.

Our Service supported a Year 11 girl with Ehlers-Danlos syndrome (type not
then determined) last year.  She also wanted to go on to FE, rather than
stay on at her school's sixth form.

We supported that choice, because it was what she wanted to do.  Although we
become particularly concerned to provide caring support for a young person
in these circumstances, it's inevitably tinged with a desire to protect.
But colleagues who have (far too much) experience of working with children
who have terminal illnesses often report that the child wants to remain
engaged in education, following as normal a path as possible, until it
becomes impossible to do so.

Without making light of the subject of death, which is destiny for all of
us, I'm still left wondering whether a forum thread entitled 'Death' is an
improvement on the threads that you're fed up with.

Regards

Biff Crabbe

----- Original Message -----
From: "KEVIN HEALY" <kevinhealy at btinternet.com>
To: <senco-forum at lists.becta.org.uk>
Sent: Sunday, February 11, 2007 5:13 PM
Subject: [senco-forum] Death

> I am getting very fed up with certain strands taking over SENCO Forum.
Can we please get back to those we work with and their needs.
>   I have a Year 11 girl who has Ehlers-Danloss type 4.  For thosw who
don't know and this will be almost everyone on the forum, I only learnt
about it when she came to us.  This condition is genetic, where parents
genes determine it.
>   This is a degenerative condition, where there is bleeding under the
skin, dislocation and strokes which obviously affect functioning.  We work
closely with the specialists, and our young person and her family are
determined to carry on as normal.  At her last annual review we discussed
the move from Year 11 to the future.  Sh eprefers the local FE college but
the course she has chosen will not be supported, we have suggested our joint
6th form with our " partner school", she wants to go to college, in my heart
of hearts I know she needs to stay with people who know her.
>   Don't think I am criticising our local college, they have done fantastic
work with loads of SEN students.  My problem is this student could die
tomorrow, at school we are ready having had 3 students die in the past 4
years, however where do I direct her ?
>   To an Fe college of 2000 where she is unknown, or to a joint 6th form of
150, where her needs are known, but which she tells me she would not like to
go to as she wants to go to college.
>   Lets get back to what really is why we are doing what we are doing.
>   Sue
>   P.S. her parents, Mum and sister are teachers and brother is in Iraq, so
we are also contending with that, are ambivalent about the whole thing.
>   Sue
>
>
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